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Applications Now Available for the
Joseph Lillo Spinal Muscular Atrophy Foundation for Children's
3rd Academic Scholarship!

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and to download the application

Extended till May 1st, 2014

In Loving Memory of
Joseph Dominic Lillo

Borrowed from Heaven June 4, 2008

Little I knew that morning, God was going to call your name, in life we loved you dearly, in death we do the same. It broke our hearts to lose you, you did not go alone, for part of us went with you, the day God called you home.

You left us beautiful memories, your love is still our guide, and though we cannot see you, you are always by our side. Our family chain is broken, and nothing seems the same, But as God calls us one by one, the chain will link again. 

Given back to Heaven August 29, 2008

Overview of the Organization

Thank you for expressing an interest in our foundation, as well as Spinal Muscular Atrophy.

The Joseph Lillo Spinal Muscular Atrophy Foundation for Children is an organization that was founded in 2008 in memory of Joseph Dominic Lillo. Joseph succumbed to Spinal Muscular Atrophy (SMA) Type I at three months old.  SMA is the #1 genetic cause of death for infants.  The statistics show one in 6,000 babies are born annually with some type, and one in 24,000 babies are born with Type I,  considered the most progressive type.  SMA is a neuromuscular disease characterized by degeneration of motor neurons resulting in the wasting away and weakness of muscles, including respiratory musculature.  SMA is caused when both parents are carriers of the recessive genetic gene found on Chromosome 5, in which 1 in 37 people are carriers.  This deadly genetic disease is far from rare, although many people have never heard of it.   

The Joseph Lillo Spinal Muscular Atrophy (SMA) Foundation for Children is a non-profit 501(c)(3) organization committed to raising awareness, as well as raising money for research and medical equipment for families affected by SMA and other disorders.


Privacy Policy

This is the website of The Joseph Lillo Spinal Muscular Atrophy Foundation for Children.  Our postal address, email and phone number is available by clicking here.

Information Collected or Depicted
Consistent with the Children’s On-Line Privacy Protection Act, we respect the privacy of children, and do not collect any more personal information than reasonably necessary to enable them to participate in the activities that are described and depicted at our Web site.   Any photos of children or children’s names used on the website are used solely with the express written approval of the child’s parent or legal guardian.

Parental Review
Parents can review the information that we have collected from their children online, prevent the further use or maintenance of such information, or direct the deletion of their children’s personal information by calling, emailing or writing us at the addresses and number provided:

The materials posted on these pages are solely for the benefit of The Joseph Lillo Spinal Muscular Atrophy Foundation for Children, its member, and the children the Foundation serves.  While we encourage visitors to our site to recommend it to others and to share the link to our site with all potential donors, supporters and contributors, no person may copy, modify or distribute any photograph on these pages, or any portion thereof, without the express permission of the Joseph Lillo Spinal Muscular Atrophy Foundation for Children  which reserves any and all intellectual property rights (including copyright) to the text, images, photographs, graphics and other works of authorship on this site.

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