Loving Memory of
Joseph Dominic Lillo
Borrowed from Heaven
June 4, 2008
I knew that morning, God was going to call your name, in life we loved
you dearly, in death we do the same. It broke our hearts to lose you,
you did not go alone, for part of us went with you, the day God called
You left us beautiful memories, your love is still our guide, and
though we cannot see you, you are always by our side. Our family chain
is broken, and nothing seems the same, But as God calls us one by one,
the chain will link again.
Given back to Heaven
August 29, 2008
Tickets on sale now for our 5th Annual Summer Fundraiser: Hearts on the Hudson! See attached flyer for info to purchase tickets.
2nd Annual Joseph Lillo Memorial Scholarship Winner: Jan-alfred Aquino of BHS! Congrats!!
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Overview of the
Thank you for
expressing an interest in our foundation, as well as Spinal Muscular
The Joseph Lillo Spinal Muscular
Atrophy Foundation for Children is an organization that was founded in
2008 in memory of Joseph Dominic Lillo. Joseph succumbed to Spinal
Muscular Atrophy (SMA) Type I at three months old. SMA is the #1
genetic cause of death for infants. The statistics show one in 6,000
babies are born annually with some type, and one in 24,000 babies are
born with Type I, considered the most progressive type. SMA is a
neuromuscular disease characterized by degeneration of motor neurons
resulting in the wasting away and weakness of muscles, including
respiratory musculature. SMA is caused when both parents are carriers
of the recessive genetic gene found on Chromosome 5, in which 1 in 37
people are carriers. This deadly genetic disease is far from rare,
although many people have never heard of it.
The Joseph Lillo Spinal
Muscular Atrophy (SMA) Foundation for Children is a non-profit
501(c)(3) organization committed to raising awareness, as well as
raising money for research and medical equipment for families
affected by SMA and other disorders.